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Terms in this set (311)
complex chronic condition (CCC) a condition that persists beyond 1 year and is multi-
organ OR critically affects one system requiring
specialty expertise
responsibilities of parents with a child - Accept the condition
with a CCC - Manage condition on a day-to-day basis
- Meet the child's normal developmental needs
- Meet the needs of other family members
- Cope with periodic crises
- Educate others about the child's condition
- Establish a support system
nursing interventions for a family + - assessment
child with CCC - provide support at time of diagnosis
- promote normalization
- promote normal development
parental overprotection characterized by...
- Sacrifices self and rest of family for the child
- Helps child even when they are capable
- Inconsistent with discipline
- Protects the child from every possible discomfort
- Denies child opportunities for independence and
growth
- Sets goals too low or too high
- Monopolizes child's time
,pediatric palliative care - an interdisciplinary collaboration that seeks to
improve the QOL for children with life threatening
conditions and their families
- focuses on preventing and relieving suffering,
regardless of the stage of disease
principles of pediatric palliative care - Can be concurrent care (provided alongside
curative and life-prolonging Tx)
- Should be offered in all care settings (inpatient,
ICU, outpatient, home, and LTCF)
- Determining what is most important to the child and
family provides guidance in establishing goals and
preferences
S&S of approaching death - loss of sensation + movement in lower extremities,
progressing upward
- sensation of heat, but the body feels cold
- loss of senses
- confusion, slurred speech, loss of consciousness
- loss of bowel + bladder control
- decreased appetite or thirst
- change in respiratory pattern
- weak, slow pulse
- hypotension
Cheyne-Stokes respirations - an abnormal respiratory pattern present close to
death
- shallow, deep breaths with periods of apnea
death rattle - an abnormal respiratory pattern present close to
death
- noisy breath sounds r/t secretions
true T or F: Grief if a necessary process.
cognitive impairment (CI) any type of intellectual disability
,3 components of cognitive - Intellectual functioning (IQ below 70)
impairment (CI) - Adaptive functioning (includes communication, self-
care, social skills, self direction, health and safety,
community use, and work)
- Onset of disabilities during childhood or < 18 y/o
causes of cognitive impairments (CI) - genetic, biochemical, and infectious
- many cases are r/t Down syndrome, fragile X
syndrome, or FAS
- trauma, inadequate nutrition, metabolic disorders
untreated, brain malformations, gestational diabetes,
psychiatric disorders w/ onset before age 18 y/o,
environmental influences
down syndrome (Trisomy 21) - a genetic disorder caused by the presence of all or
part of a third copy of chromosome 21
- higher risk of this in older mothers
diagnostic criteria for down syndrome - Clinical manifestations
- Chromosome analysis to confirm
- Observe for associated problems (CHD, respiratory
infections, hypothyroid, risk of leukemia, atlantoaxial
instability)
nursing interventions for down - Support family at the time of diagnosis
syndrome - Assist family in preventing physical problems
- Assist in prenatal diagnosis and genetic counseling
Fragile X syndrome - the most common inherited cause of cognitive
development
- caused by an abnormal gene on the end of the
long arm of the X chromosome
S&S of Fragile X syndrome - long face
- prominent jaw
- large, protruding ears
- large testes
, Tx for Fragile X syndrome - Medications to control temper outbursts
- Early interventions
hearing impairment - a disability that ranges from slight to profound
- Etiology: familial; anatomical; LBW; perinatal
asphyxia; perinatal infection; maternal substance
abuse; chronic ear infection; prolonged neonatal
oxygen supplementation; ototoxic drug
administration
conductive hearing loss - hearing impairment caused by interference with
sound or vibratory energy in the external canal,
middle ear, or ossicles
- most often caused by recurrent otitis media
sensorineural hearing loss hearing loss caused by damage to the inner ear or
auditory nerve
Tx for hearing impairments Conductive hearing loss...
- Treat infections with antibiotics and tympanostomy
tubes
- Permanent loss is treated with hearing aids
Sensorineural hearing loss...
- Cochlear implants
nursing interventions for hearing - Lip reading and cued speech
impairments - Sign language
- Speech language therapy
- Additional aids
- Socialization
- Support child and family
- Care for child during hospitalization
- Assist in measures to prevent hearing impairment
visual impairment - causes: trauma; ROP; retinoblastoma; albinism;
infections (herpes, chlamydia, gonorrhea, rubella,
syphilis)
- encompasses both partial sight and legal blindness