, Contents
Preface ix
Foreword xi
Acknowledgments xiii
Part 1: The Basics 1
Questions 1–6 answer basic questions about chronic illness:
• What is chronic illness?
• What causes chronic illness?
• How is the treatment of chronic illness different from the treatment
of acute illness?
Part 2: Stages of Grieving 11
Questions 7–18 deal with some of the difficult emotions that arise after a diagnosis
of chronic illness:
• Did I cause my disease?
• If I’m never going to get better, why bother trying?
• How can I manage depression?
Part 3: How Chronic Illness Affects Social Relationships 25
Questions 19–24 address the impact of chronic illness on relationships with loved
ones, family, and friends:
• Why do I feel so isolated?
• How can I make other people understand what I am going through?
• Should I tell people about my condition?
Part 4: Chronic Illness and the Law 37
Questions 25–30 explain the rights and protections that the law provides
for chronically ill and disabled people:
• What rights do I have under the Americans with Disabilities Act?
• What is the Family Medical Leave Act, and how does it affect me?
• How can I be sure that my wishes will be honored if I am unable to make
medical decisions for myself?
, 100 QUESTIONS & ANSWERS ABOUT CHRONIC ILLNESS
Part 5: Medical Providers and Organizations 47
Questions 31–38 deal with common problems that patients have with doctors,
medical staff, and insurance companies:
• How can I get my doctors to talk to one another about my medical care?
• Why do I have to see doctors so often?
• Can I fire my doctor? Can my doctor fire me?
• How can I challenge decisions made by my insurance company?
Part 6: Medication 59
Questions 39–44 discuss medications, side effects, and treatment plans:
• Why don’t I notice any positive changes when I take my medications?
• Why does my doctor keep changing my medications and treatment plan?
Is my doctor experimenting on me?
• How can I find help to pay for my medical expenses and medications?
Part 7: Taking an Active Role in Your Own Care 69
Questions 45–59 offer advice on how to become an active participant in managing
your disease:
• How can I regain control of my health?
• What is the role of positive thinking in chronic illness?
• Is exercise helpful in managing chronic illness?
• How can I find trustworthy information about my condition?
Part 8: Stress 93
Questions 60–64 explain the connection between stress and illness and provide
helpful approaches to managing stress:
• What is the role of stress in chronic illness?
• How can I manage stress that cannot be avoided?
• How can meditation be used to reduce stress and manage chronic illness?
Part 9: Clinical Trials 101
Questions 65–67 describe clinical trials and how to find one appropriate for you:
• What are clinical trials?
• What are the risks and benefits of clinical trials?
• How can I find clinical trials?
vi
, 100 QUESTIONS & ANSWERS ABOUT CHRONIC ILLNESS
Contents
Part 10: Special Considerations for
Common Chronic Illnesses 105
Questions 68–91 discuss some of the most common chronic illnesses and offer
management strategies:
• What is autoimmunity?
• How do I know if alcohol or other substances have become a chronic illness
for me?
• What is COPD?
• What can I do to about high blood pressure?
Part 11: Looking Ahead 131
Questions 92–100 provide answers to help you move forward and to live your best
life with chronic illness:
• Where can I find a support network?
• How can I find purpose and meaning in life again?
• How can I stop myself from worrying about the future?
• What is the difference between cure and healing?
Resources 145
Appendix 161
Glossary 165
Index 167
vii
Preface ix
Foreword xi
Acknowledgments xiii
Part 1: The Basics 1
Questions 1–6 answer basic questions about chronic illness:
• What is chronic illness?
• What causes chronic illness?
• How is the treatment of chronic illness different from the treatment
of acute illness?
Part 2: Stages of Grieving 11
Questions 7–18 deal with some of the difficult emotions that arise after a diagnosis
of chronic illness:
• Did I cause my disease?
• If I’m never going to get better, why bother trying?
• How can I manage depression?
Part 3: How Chronic Illness Affects Social Relationships 25
Questions 19–24 address the impact of chronic illness on relationships with loved
ones, family, and friends:
• Why do I feel so isolated?
• How can I make other people understand what I am going through?
• Should I tell people about my condition?
Part 4: Chronic Illness and the Law 37
Questions 25–30 explain the rights and protections that the law provides
for chronically ill and disabled people:
• What rights do I have under the Americans with Disabilities Act?
• What is the Family Medical Leave Act, and how does it affect me?
• How can I be sure that my wishes will be honored if I am unable to make
medical decisions for myself?
, 100 QUESTIONS & ANSWERS ABOUT CHRONIC ILLNESS
Part 5: Medical Providers and Organizations 47
Questions 31–38 deal with common problems that patients have with doctors,
medical staff, and insurance companies:
• How can I get my doctors to talk to one another about my medical care?
• Why do I have to see doctors so often?
• Can I fire my doctor? Can my doctor fire me?
• How can I challenge decisions made by my insurance company?
Part 6: Medication 59
Questions 39–44 discuss medications, side effects, and treatment plans:
• Why don’t I notice any positive changes when I take my medications?
• Why does my doctor keep changing my medications and treatment plan?
Is my doctor experimenting on me?
• How can I find help to pay for my medical expenses and medications?
Part 7: Taking an Active Role in Your Own Care 69
Questions 45–59 offer advice on how to become an active participant in managing
your disease:
• How can I regain control of my health?
• What is the role of positive thinking in chronic illness?
• Is exercise helpful in managing chronic illness?
• How can I find trustworthy information about my condition?
Part 8: Stress 93
Questions 60–64 explain the connection between stress and illness and provide
helpful approaches to managing stress:
• What is the role of stress in chronic illness?
• How can I manage stress that cannot be avoided?
• How can meditation be used to reduce stress and manage chronic illness?
Part 9: Clinical Trials 101
Questions 65–67 describe clinical trials and how to find one appropriate for you:
• What are clinical trials?
• What are the risks and benefits of clinical trials?
• How can I find clinical trials?
vi
, 100 QUESTIONS & ANSWERS ABOUT CHRONIC ILLNESS
Contents
Part 10: Special Considerations for
Common Chronic Illnesses 105
Questions 68–91 discuss some of the most common chronic illnesses and offer
management strategies:
• What is autoimmunity?
• How do I know if alcohol or other substances have become a chronic illness
for me?
• What is COPD?
• What can I do to about high blood pressure?
Part 11: Looking Ahead 131
Questions 92–100 provide answers to help you move forward and to live your best
life with chronic illness:
• Where can I find a support network?
• How can I find purpose and meaning in life again?
• How can I stop myself from worrying about the future?
• What is the difference between cure and healing?
Resources 145
Appendix 161
Glossary 165
Index 167
vii