Data and Society Final
american statistical association's ethical guidelines - ANS--professional integrity and
accountability
-integrity of data and methods
-responsibilities to the science/ public
-instituted for protection and support of statistician
\beneficence - ANS-researchers should undertake two separate processes: a risk/ benefit
analysis and then a decision about whether the risks and benefits strike an appropriate
ethical balance
\dataveillance - ANS-systematic use of personal data systems in the investigation or
monitoring of the actions or communications of one or more persons
\deontological theory - ANS--theory of the right is fundamental
-choices should be made based on the rules
-everyone is treated with dignity
-obligation is independent of value
-obligation based on reason alone
-treat people as ends in themselves, never only as means to an end
\direct police contact - ANS-datasets now include info on individuals who have not had any
__________
\dragnet surveillance practices - ANS-collect data on everyone, rather than merely
individuals under suspicion
\ethics - ANS-study of what it means to do the right thing
\human subject (def 1) - ANS-living individual who participates in research investigation as a
recipient of an item regulated by the FDA, as a control, or on whose specimen an
investigational device is used
\human subject (def 2) - ANS-a living individual about whom a research obtains data through
intervention or interaction w the individual or identifiable private information
\IRB and data science - ANS--may involve human subject as individual or may aaffect much
wide group of people
-moves ethical inquiry away from traditional harms like physical pain to less tangible
concepts such as info privacy impact and data discirmination
-fundamentally changes our understanding of research data to be infinitely connectable,
indefinitely re-purposable, continuously updatable and easily removed from the context of
collection
\IRB origin - ANS--originally developed in direct response to research abuse:
-post-WWII doctors' trial - tuskegee syphilis study
-some were ijected w disease but didn,t know, even after cures available the people weren't
told
\justice - ANS--addresses distribution of burdens and benefits of research
-should not be the case that one group in society bears the costs of research while another
reaps its benefits
\mass dataveillance - ANS--systematic use of personal data systems in investigation or
monitoring of actions or communications of groups of people
american statistical association's ethical guidelines - ANS--professional integrity and
accountability
-integrity of data and methods
-responsibilities to the science/ public
-instituted for protection and support of statistician
\beneficence - ANS-researchers should undertake two separate processes: a risk/ benefit
analysis and then a decision about whether the risks and benefits strike an appropriate
ethical balance
\dataveillance - ANS-systematic use of personal data systems in the investigation or
monitoring of the actions or communications of one or more persons
\deontological theory - ANS--theory of the right is fundamental
-choices should be made based on the rules
-everyone is treated with dignity
-obligation is independent of value
-obligation based on reason alone
-treat people as ends in themselves, never only as means to an end
\direct police contact - ANS-datasets now include info on individuals who have not had any
__________
\dragnet surveillance practices - ANS-collect data on everyone, rather than merely
individuals under suspicion
\ethics - ANS-study of what it means to do the right thing
\human subject (def 1) - ANS-living individual who participates in research investigation as a
recipient of an item regulated by the FDA, as a control, or on whose specimen an
investigational device is used
\human subject (def 2) - ANS-a living individual about whom a research obtains data through
intervention or interaction w the individual or identifiable private information
\IRB and data science - ANS--may involve human subject as individual or may aaffect much
wide group of people
-moves ethical inquiry away from traditional harms like physical pain to less tangible
concepts such as info privacy impact and data discirmination
-fundamentally changes our understanding of research data to be infinitely connectable,
indefinitely re-purposable, continuously updatable and easily removed from the context of
collection
\IRB origin - ANS--originally developed in direct response to research abuse:
-post-WWII doctors' trial - tuskegee syphilis study
-some were ijected w disease but didn,t know, even after cures available the people weren't
told
\justice - ANS--addresses distribution of burdens and benefits of research
-should not be the case that one group in society bears the costs of research while another
reaps its benefits
\mass dataveillance - ANS--systematic use of personal data systems in investigation or
monitoring of actions or communications of groups of people
