Name 5 hospital/institution-based cancer registries - Answers Hospital, network/integrated, free
-standing (outpt) military, VA
Which type of registry collects data in a DEFINED population such as the state, providence or
region - Answers Population based cancer registry
what is the focus of a population based cancer registry? - Answers Epidemiology and public
health (they look at a broader health)
Monitors cancer trends over time, collects vital statistics (death certificates) collects data from
hospitals, path labs. Every state has one - Answers Population based cancer registry
Which are the two national population based cancer registries? - Answers National Program of
Cancer Registries (NPCR) and Surveillance, Epidemiology, and End Results (SEER)
non-population based central cancer registries are not defined based on a defined geographical
area. Which ones are they? - Answers NCDB, Dept of Defense, Auto central tumor registry
ACTUR, Dept of VA affairs
Where does the data that gets reported to ACTUR come from? - Answers cancer data that
comes from the military health system gets reported to the ACTUR (Automated Central Tumor
Registry)
A non-population cancer registry that is a nationwide outcomes oncology registry. It is a joined
effort of the American Cancer Society and the American College of Surgeons. - Answers NCDB
4 specialty registries - Answers Central Brain Tumor Registry (CBTR)
Breast Cancer Surveillance Consortium (BCSC)
Pediatric MDS Registry
Cancer Genetics Network (CGN)
The ACTUR (Automated Central Tumor Registry) of the US Dept of Defense is an example of -
Answers non-population based central cancer registry
The lead organization for setting standards for hospital based registries - Answers American
College of Surgeons (ACoS)
A consortium (association of several organizations) of professional organizations dedicated to
improving survival and quality of life for cancer patients is the - Answers COC (Commission on
Cancer)
The lead organization for setting standards for hospital based registries - Answers COC
, (Commission on Cancer)
Provides definitions and instructions for coding pt diagnosis, tx, and outcomes. Describes the
types of cases that must be abstracted and followed by a COC accreditated cancer programs. -
Answers STORE manual (Standards for Oncology Registry Entry)
A COC facility reports cancer data to the ____________annually (requirement)
a non-COC facility reports cander data to the______________based on the call for data
requirements - Answers NCDB (not a population based cancer registry)
70-% of cancer cases in the US are reported to this facility - Answers NCDB (Nationwide
Oncology Cancer Database)
A nice, rich database for researchers, a joint effort of the ACS and ACoS, its a requirement for
COC accreditated facilities to report to this facility. Data collected is used to create benchmarks
for participating hospitals. Identifies quality improvement. - Answers NCDB
The facility within the ACoS that developed TNM Staging (Tumor, Node, Metastasis) - Answers
AJCC American Joint Committee on Cancer
This staging system is a clinical based staging system and provides a prognostic stage for
cancer cases and is used world wide - Answers TNM staging system
Another company under ACoS that developed criteria for breast centers and a site visit process
to monitor compliance - Answers NAPBC (National Accreditation Program for Breast Centers)
A program administered by CDC. Established in 1992. supports central cancer registries -
Answers NPCR National Program of Cancer Registries
A part of the WHO. (world health centerorganizations) Provides international collaboration in
cancer research. Coordinates research across nations. Classification of tumors (blue books) -
Answers IARC. International Agency for Research on Cancer
Fosters exchange of information between cancer registries internationally - globocan of WHO
(global cancer statistics in 5 continents) - Answers IACR International Agency of Cancer
Registries
It is not in every state. It is a part of NCI (National Cancer Institute) collects incidence and
survival data from population-based cancer registries covering 34% of U.S. population,Quality
improvement. Data collecting began in 1973. - Answers SEER Surveillance, Epidemiology End
Results
Not for profit organization that represents cancer registry professionals. Primary focus is
education and certification of CTR's - Answers NCRA National Cancer Registrars Association
a population based registry that includes data collected and reported to statistics Canada by